Please use this identifier to cite or link to this item: https://dl.eusset.eu/handle/20.500.12015/3966
Title: Prescriptions, X-rays and Grocery Lists. Designing a Personal Health Record to Support (The Invisible Work Of) Health Information Management in the Household
Authors: Piras, Enrico Maria
Zanutto, Alberto
Keywords: Electronic health record;Health record management;Healthcare infrastructures;Invisible work;Personal health record;Qualitative research;Self-care
Issue Date: 2010
Publisher: Springer
metadata.dc.relation.ispartof: Computer Supported Cooperative Work (CSCW): Vol. 19, No. 6
metadata.mci.reference.pages: 585-613
Series/Report no.: Computer Supported Cooperative Work (CSCW)
Abstract: For many years the introduction of Electronic Health Records (EHRs) in medical practice has been considered the best way to provide efficient document sharing among different organizational settings. The actual results of these technologies, though, do not seem to have matched expectations. The issue of document sharing has been lately readdressed by proposing the creation of patient-controlled information and communication technologies, Personal Health Records (PHRs), providing laypeople the tools to access, manage and share their health information electronically by connecting to the existing EHRs and other institutional information systems. In this scenario, patients are called to play a major role in coordinating healthcare professionals by providing them the information they need. From a CSCW perspective the PHR offers an interesting case to reflect on cooperative work that requires new infrastructures that intersect organizational settings and extend into domestic environments. So far though, there has not been enough research to shed light on the self-care activities carried out in the households and how these integrate with the organizational practices of doctors and institutions. Our analyses show that health record keeping is an articulation work necessary for meetings with doctors to proceed smoothly. To do so, people integrate the information contained in medical documents by working on them with annotations, underlinings and integrations. Moreover, we show that health record keeping is a spatialized activity that is inextricably interwoven with the everyday routine and objects. Finally, we provide a tentative classification of three different strategies laypeople use to sort out health records: minimum effort, adaptive, networking.
metadata.dc.identifier.doi: 10.1007/s10606-010-9128-5
URI: http://dx.doi.org/10.1007/s10606-010-9128-5
https://dl.eusset.eu/handle/20.500.12015/3966
ISSN: 1573-7551
Appears in Collections:JCSCW Vol. 19 (2010)

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