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Translating Social Support Practices into Online Services for Family Caregivers

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2009

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Proceedings of the 2009 ACM International Conference on Supporting Group Work

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Association for Computing Machinery

Abstract

The aim of our ongoing research project is to design a platform for family caregivers to help them cope with the burden of daily caregiving. With a view to designing relevant information and communication services, we analyzed the social support practices observed among the members of a group of caregivers, whose spouses were suffering from Alzheimer's disease. Based on interviews and a field survey, we characterized this collective and identified the caregivers' latent and expressed needs. Our approach consists in linking these needs to naturally occurring situations in order to translate them into meaningful functionalities.

Description

Tixier, Matthieu; Gaglio, Gérald; Lewkowicz, Myriam (2009): Translating Social Support Practices into Online Services for Family Caregivers. Proceedings of the 2009 ACM International Conference on Supporting Group Work. DOI: 10.1145/1531674.1531685. New York, NY, USA: Association for Computing Machinery. pp. 71–80. Sanibel Island, Florida, USA

Keywords

support group, healthcare network, design, social support, semi-directive interviews, caregivers' community

Citation

DOI

10.1145/1531674.1531685

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URI

https://dl.eusset.eu/handle/20.500.12015/4910

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GROUP 2009

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Number of citations to item: 32

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  • Yomna Aly, Cosmin Munteanu (2024): Privacy-Conscious Design Requirements to Support Older Adults’ Health Information Seeking, In: Lecture Notes in Computer Science, doi:10.1007/978-3-031-61379-1_13
  • Ji Youn Shin, Dima Chaar, Catherine Davis, Sung Won Choi, Hee Rin Lee (2021): Every Cloud Has a Silver Lining: Exploring Experiential Knowledge and Assets of Family Caregivers, In: Proceedings of the ACM on Human-Computer Interaction CSCW2(5), doi:10.1145/3479560
  • Pin Sym Foong, Charis Anne Lim, Joshua Wong, Chang Siang Lim, Simon Tangi Perrault, Gerald CH Koh (2020): "You Cannot Offer Such a Suggestion", In: Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems, doi:10.1145/3313831.3376607
  • John Vines, Peter C. Wright, David Silver, Maggie Winchcombe, Patrick Olivier (2015): Authenticity, Relatability and Collaborative Approaches to Sharing Knowledge about Assistive Living Technology, In: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing, doi:10.1145/2675133.2675222
  • Adrian Petterson, Isabella Jaimes Rodriguez, Olivia Doggett, Priyank Chandra (2024): Networks of care in digital domestic labour economies, In: Proceedings of the CHI Conference on Human Factors in Computing Systems, doi:10.1145/3613904.3642200
  • Rama Adithya Varanasi, Nicola Dell, Aditya Vashistha (2024): Saharaline: A Collective Social Support Intervention for Teachers in Low-Income Indian Schools, In: Proceedings of the CHI Conference on Human Factors in Computing Systems, doi:10.1145/3613904.3642617
  • Yomna Aly, Cosmin Munteanu (2016): An Information-Centric Framework for Mobile Collaboration Between Seniors and Caregivers that Balances Independence, Privacy, and Social Connectedness, In: Communications in Computer and Information Science, doi:10.1007/978-3-319-40548-3_66
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  • Doğa Gatos, Aslı Günay, Güncel Kırlangıç, Kemal Kuscu, Asim Evren Yantac (2021): How HCI Bridges Health and Design in Online Health Communities: A Systematic Review, In: Designing Interactive Systems Conference 2021, doi:10.1145/3461778.3462100
  • Will Simm, Maria Angela Ferrario, Adrian Gradinar, Jon Whittle (2014): Prototyping 'clasp', In: Proceedings of the 2014 conference on Designing interactive systems, doi:10.1145/2598510.2600880
  • Malte Paskuda, Myriam Lewkowicz (2016): Anonymity interacting with participation on a Q&A site, In: AI & SOCIETY 3(32), doi:10.1007/s00146-016-0660-9
  • Vince Bartle, Janice Lyu, Freesoul El Shabazz-Thompson, Yunmin Oh, Angela Anqi Chen, Yu-Jan Chang, Kenneth Holstein, Nicola Dell (2022): “A Second Voice”: Investigating Opportunities and Challenges for Interactive Voice Assistants to Support Home Health Aides, In: CHI Conference on Human Factors in Computing Systems, doi:10.1145/3491102.3517683
  • Pin Sym Foong, Natasha Ureyang, Charisse Foo, Sajeban Antonyrex, Gerald CH Koh (2024): Designing for Caregiver-facing Values Elicitation Tools, In: Proceedings of the CHI Conference on Human Factors in Computing Systems, doi:10.1145/3613904.3642214
  • Naomi Augar, John Zeleznikow (2013): Developing Online Support and Counseling to Enhance Family Dispute Resolution in Australia, In: Group Decision and Negotiation 3(23), doi:10.1007/s10726-013-9352-8
  • Yihan Yu, David W. McDonald (2023): Conflicts of Control: Continuous Blood Glucose Monitoring and Coordinated Caregiving for Teenagers with Type 1 Diabetes, In: Proceedings of the ACM on Human-Computer Interaction CSCW2(7), doi:10.1145/3610097
  • Matthieu Tixier, Myriam Lewkowicz, Michel Marcoccia, Hassan Atifi, Aurélien Bénel, Gérald Gaglio, Nadia Gauducheau (2010): Practices Analysis and Digital Platform Design: An Interdisciplinary Study of Social Support, In: Proceedings of COOP 2010, doi:10.1007/978-1-84996-211-7_17
  • Xin Yao Lin, Herman Saksono, Elizabeth Stowell, Margie E. Lachman, Carmen Castaneda-Sceppa, Andrea G. Parker (2020): Go&Grow, In: Proceedings of the ACM on Human-Computer Interaction CSCW2(4), doi:10.1145/3415222
  • Myriam Lewkowicz, Pascal Salembier (2015): Analysing and Supporting Cooperative Practices: An Interdisciplinary Approach, In: Computer Supported Cooperative Work, doi:10.1007/978-1-4471-6720-4_9
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  • Malte Paskuda, Myriam Lewkowicz (2015): Anonymous Quorans are still Quorans, just anonymous, In: Proceedings of the 7th International Conference on Communities and Technologies, doi:10.1145/2768545.2768551
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  • Matthieu Tixier, Myriam Lewkowicz (2011): Supporting the knowledge sharing dimension of social support: The case of Aloa-aidants.fr, In: 2011 International Conference on Collaboration Technologies and Systems (CTS), doi:10.1109/cts.2011.5928694
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  • Woosuk Seo, Andrew B.L. Berry, Prachi Bhagane, Sung Won Choi, Ayse G. Buyuktur, Sun Young Park (2019): Balancing Tensions between Caregiving and Parenting Responsibilities in Pediatric Patient Care, In: Proceedings of the ACM on Human-Computer Interaction CSCW(3), doi:10.1145/3359255
  • Elizabeth Kaziunas, Ayse G. Buyuktur, Jasmine Jones, Sung W. Choi, David A. Hanauer, Mark S. Ackerman (2015): Transition and Reflection in the Use of Health Information, In: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing, doi:10.1145/2675133.2675276
  • Matthieu Tixier, Myriam Lewkowicz (2016): "Counting on the Group", In: Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems, doi:10.1145/2858036.2858477
  • Matthieu Tixier, Myriam Lewkowicz (2011): Design and Evaluation of an Online Social Support Application for Family Caregivers, In: Lecture Notes in Computer Science, doi:10.1007/978-3-642-21796-8_29
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