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Locating Patient Expertise in Everyday Life

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2009

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Proceedings of the 2009 ACM International Conference on Supporting Group Work

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Association for Computing Machinery

Abstract

Coping with a new health issue often requires individuals to acquire knowledge and skills to manage personal health. Many patients turn to one another for experiential expertise outside the formal bounds of the health-care system. Internet-based social software can facilitate expertise sharing among patients, but provides only limited ways for users to locate sources of patient expertise. Although much prior research has investigated expertise location and systems to augment expertise sharing in workplace organizations, the transferability of this knowledge to other contexts, such as personal health, is unclear. Guided by expertise locating frameworks drawn from prior work, we conducted a field study to investigate expertise locating in the informal and everyday context of women diagnosed with breast cancer. Similarities between patients' expertise locating practices and practices of professionals in workplace organizations suggest similar support strategies could apply in both contexts. However, unlike professionals, unsolicited advice often triggered patients to locate expertise. They identified expertise through various forms of gatekeeping. The high-stakes nature of problems patients faced also led them to use triangulation strategies in anticipation of breakdowns in expertise location. Based on these key differences, we explored five design additions to social software that could support patients in their critical need to locate patient expertise.

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Civan, Andrea; McDonald, David W.; Unruh, Kenton T.; Pratt, Wanda (2009): Locating Patient Expertise in Everyday Life. Proceedings of the 2009 ACM International Conference on Supporting Group Work. DOI: 10.1145/1531674.1531718. New York, NY, USA: Association for Computing Machinery. pp. 291–300. Sanibel Island, Florida, USA

Keywords

expertise location, patient expertise, expertise sharing

Citation

DOI

10.1145/1531674.1531718

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https://dl.eusset.eu/handle/20.500.12015/4884

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GROUP 2009

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Number of citations to item: 40

  • Ayhan Durmuş (2024): The influence of digital literacy on mHealth app usability: The mediating role of patient expertise, In: DIGITAL HEALTH, doi:10.1177/20552076241299061
  • Lisa Graham, Anthony Tang, Carman Neustaedter (2016): Help Me Help You, In: Proceedings of the 19th International Conference on Supporting Group Work, doi:10.1145/2957276.2957293
  • K. KHAIR, M. HOLLAND, S. CARRINGTON (2011): Social networking for adolescents with severe haemophilia, In: Haemophilia 3(18), doi:10.1111/j.1365-2516.2011.02689.x
  • Sean A Munson, Hasan Cavusoglu, Larry Frisch, Sidney Fels (2013): Sociotechnical Challenges and Progress in Using Social Media for Health, In: Journal of Medical Internet Research 10(15), doi:10.2196/jmir.2792
  • Pei-Yao Hung, Drew Canada, Michelle A. Meade, Mark S. Ackerman (2022): Data Checkers: A Grid-Based UI for Managing Patient-Generated Data Sharing to Support Collaborative Self-Care, In: Frontiers in Computer Science, doi:10.3389/fcomp.2021.639748
  • (2010): Computer Highlights Society Magazines, In: Computer 11(43), doi:10.1109/mc.2010.311
  • Eleanor R. Burgess, Elizabeth Kaziunas, Maia Jacobs (2022): Care Frictions: A Critical Reframing of Patient Noncompliance in Health Technology Design, In: Proceedings of the ACM on Human-Computer Interaction CSCW2(6), doi:10.1145/3555172
  • Xinning Gui, Yunan Chen, Kathleen H. Pine (2018): Navigating the Healthcare Service "Black Box", In: Proceedings of the ACM on Human-Computer Interaction CSCW(2), doi:10.1145/3274330
  • Chiara Libreri, Guendalina Graffigna (2016): How Web 2.0 Shapes Patient Knowledge Sharing, In: Business Intelligence, doi:10.4018/978-1-4666-9562-7.ch105
  • Ellen L. Rubenstein (2012): “Things my doctor never told me”: Bridging information gaps in an online community, In: Proceedings of the American Society for Information Science and Technology 1(49), doi:10.1002/meet.14504901126
  • Logan Kendall, Andrea Hartzler, Predrag Klasnja, Wanda Pratt (2011): Descriptive analysis of physical activity conversations on Twitter, In: CHI '11 Extended Abstracts on Human Factors in Computing Systems, doi:10.1145/1979742.1979807
  • Shefali Haldar, Sonali R. Mishra, Maher Khelifi, Ari H. Pollack, Wanda Pratt (2017): Opportunities and Design Considerations for Peer Support in a Hospital Setting, In: Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems, doi:10.1145/3025453.3026040
  • Amanda Lazar, Emma E. Dixon (2019): Safe Enough to Share, In: Proceedings of the ACM on Human-Computer Interaction CSCW(3), doi:10.1145/3359187
  • Chiara Libreri, Guendalina Graffigna (2016): How Web 2.0 Shapes Patient Knowledge Sharing, In: Mobile Computing and Wireless Networks, doi:10.4018/978-1-4666-8751-6.ch060
  • Melanie Duckert, Louise Barkhuus (2022): Protecting Personal Health Data through Privacy Awareness, In: Proceedings of the ACM on Human-Computer Interaction GROUP(6), doi:10.1145/3492830
  • Nazanin Andalibi, Madison K Flood (2021): Considerations in Designing Digital Peer Support for Mental Health: Interview Study Among Users of a Digital Support System (Buddy Project), In: JMIR Mental Health 1(8), doi:10.2196/21819
  • Joshua Introne, Ingrid Erickson, Bryan Semaan, Sean Goggins (2019): Designing sustainable online support: Examining the effects of design change in 49 online health support communities, In: Journal of the Association for Information Science and Technology 4(71), doi:10.1002/asi.24250
  • Drashko Nakikj, Lena Mamykina (2017): A Park or A Highway, In: Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing, doi:10.1145/2998181.2998339
  • Gertrude Buttigieg, Christopher Vella (2022): Engaging Patient Groups in End-of-Life, In: Advancing Global Bioethics, doi:10.1007/978-3-030-86386-9_13
  • Joshua Introne, Bryan Semaan, Sean Goggins (2016): A Sociotechnical Mechanism for Online Support Provision, In: Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems, doi:10.1145/2858036.2858582
  • Kathleen O'Leary, Arpita Bhattacharya, Sean A. Munson, Jacob O. Wobbrock, Wanda Pratt (2017): Design Opportunities for Mental Health Peer Support Technologies, In: Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing, doi:10.1145/2998181.2998349
  • Maia L. Jacobs, James Clawson, Elizabeth D. Mynatt (2015): Comparing Health Information Sharing Preferences of Cancer Patients, Doctors, and Navigators, In: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing, doi:10.1145/2675133.2675252
  • Samantha Adams (2017): Ubiquitous Digital Devices and Health: Reflections on Foucault’s Notion of the ‘Clinic’, In: Law, Governance and Technology Series, doi:10.1007/978-3-319-48342-9_9
  • John Vines, Peter C. Wright, David Silver, Maggie Winchcombe, Patrick Olivier (2015): Authenticity, Relatability and Collaborative Approaches to Sharing Knowledge about Assistive Living Technology, In: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing, doi:10.1145/2675133.2675222
  • Doğa Gatos, Aslı Günay, Güncel Kırlangıç, Kemal Kuscu, Asim Evren Yantac (2021): How HCI Bridges Health and Design in Online Health Communities: A Systematic Review, In: Designing Interactive Systems Conference 2021, doi:10.1145/3461778.3462100
  • Matthew Willis (2019): I’m Trying to Find my Way of Staying Organized: the Socio-Technical Assemblages of Personal Health Information Management, In: Computer Supported Cooperative Work (CSCW) 6(28), doi:10.1007/s10606-019-09346-z
  • Jordan Eschler, Wanda Pratt (2017): "I'm so glad I met you", In: Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing, doi:10.1145/2998181.2998326
  • Andrea Civan-Hartzler, David W. McDonald, Chris Powell, Meredith M. Skeels, Marlee Mukai, Wanda Pratt (2010): Bringing the field into focus, In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, doi:10.1145/1753326.1753577
  • Nazanin Andalibi, Madison K Flood (2020): Considerations in Designing Digital Peer Support for Mental Health: Interview Study Among Users of a Digital Support System (Buddy Project) (Preprint), doi:10.2196/preprints.21819
  • Andrea Hartzler, Wanda Pratt (2011): Managing the Personal Side of Health: How Patient Expertise Differs from the Expertise of Clinicians, In: Journal of Medical Internet Research 3(13), doi:10.2196/jmir.1728
  • Hyang-Sook Kim, S. Shyam Sundar (2015): Motivating contributions to online forums: can locus of control moderate the effects of interface cues?, In: Health Communication 5(31), doi:10.1080/10410236.2014.981663
  • G Olson, G Mark, E Churchill, D Rotman (2010): New Missions for a Sociotechnical Infrastructure, In: Computer 11(43), doi:10.1109/mc.2010.321
  • Amanda Lazar, Norman Makoto Su, Jeffrey Bardzell, Shaowen Bardzell (2019): Parting the Red Sea, In: Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems, doi:10.1145/3290605.3300710
  • Chiara Libreri, Guendalina Graffigna (2000): How Web 2.0 Shapes Patient Knowledge Sharing, In: Advances in Healthcare Information Systems and Administration, doi:10.4018/978-1-4666-4321-5.ch014
  • Jordan Eschler, Eleanor R. Burgess, Madhu Reddy, David C. Mohr (2020): Emergent Self-Regulation Practices in Technology and Social Media Use of Individuals Living with Depression, In: Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems, doi:10.1145/3313831.3376773
  • Carolyn E. Pang, Carman Neustaedter, Bernhard E. Riecke, Erick Oduor, Serena Hillman (2013): Technology preferences and routines for sharing health information during the treatment of a chronic illness, In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, doi:10.1145/2470654.2466232
  • Jinye Peng, Naiquan Zheng, Jianping Fan (2013): Leveraging Social Supports for Improving Personal Expertise on ACL Reconstruction and Rehabilitation, In: IEEE Journal of Biomedical and Health Informatics 2(17), doi:10.1109/titb.2012.2226737
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