Aligning Concerns in Telecare: Three Concepts to Guide the Design of Patient-Centred E-Health

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dc.contributor.authorAndersen, Tariq Osman
dc.contributor.authorBansler, Jørgen Peter
dc.contributor.authorKensing, Finn
dc.contributor.authorMoll, Jonas
dc.contributor.authorMønsted, Troels
dc.contributor.authorNielsen, Karen Dam
dc.contributor.authorNielsen, Olav Wendelboe
dc.contributor.authorPetersen, Helen Høgh
dc.contributor.authorSvendsen, Jesper Hastrup
dc.date.accessioned2020-06-06T13:06:09Z
dc.date.available2020-06-06T13:06:09Z
dc.date.issued43739
dc.description.abstractThe design of patient-centred e-health services embodies an inherent tension between the concerns of clinicians and those of patients. Clinicians’ concerns are related to professional issues to do with diagnosing and curing disease in accordance with accepted medical standards. In contrast, patients’ concerns typically relate to personal experience and quality of life issues. It is about their identity, their hopes, their fears and their need to maintain a meaningful life. This divergence of concerns presents a fundamental challenge for designers of patient-centred e-health services. We explore this challenge in the context of chronic illness and telecare. Based on insights from medical phenomenology as well as our own experience with designing an e-health service for patients with chronic heart disease, we emphasise the importance – and difficulty – of aligning the concerns of patients and clinicians. To deal with this, we propose a set of concepts for analysing concerns related to the design of e-health services: A concern is (1) meaningful if it is relevant and makes sense to both patients and clinicians, (2) actionable if clinicians or patients – at least in principle – are able to take appropriate action to deal with it, and (3) feasible if it is easy and convenient to do so within the organisational and social context. We conclude with a call for a more participatory and iterative approach to the design of patient-centred e-health services.de
dc.identifier.doi10.1007/s10606-018-9309-1
dc.identifier.pissn1573-7551
dc.identifier.urihttp://dx.doi.org/10.1007/s10606-018-9309-1
dc.identifier.urihttps://dl.eusset.eu/handle/20.500.12015/3754
dc.publisherSpringer
dc.relation.ispartofComputer Supported Cooperative Work (CSCW): Vol. 28, No. 6
dc.relation.ispartofseriesComputer Supported Cooperative Work (CSCW)
dc.subjectAlignment of concerns
dc.subjectMedical phenomenology
dc.subjectParticipatory design
dc.subjectPatient-centred e-health
dc.subjectPatient-clinician interaction
dc.subjectPatient-provider relationship
dc.titleAligning Concerns in Telecare: Three Concepts to Guide the Design of Patient-Centred E-Healthde
dc.typeText/Journal Article
gi.citation.endPage1072
gi.citation.startPage1039

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JCSCW Vol. 28 (2019)